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EVENT ANNOUNCEMENT PRESS RELEASE

Riyadh, Kingdom of Saudi Arabia, February 13, 2024;
Riyadh to host the Saudi Rare Disease Summit on 16 -17 February 2024, organized by the Saudi Pediatric Neurology Society (SPNS), and Maarefah Management the world-class events management company, and accredited by the Saudi Commission for Health Specialties, and supported by the Rare Disease Day, the event is a unique platform that explore the area of rare diseases and fosters collaboration among diverse stakeholders, such as researchers, clinicians, caregivers, and policymakers for optimizing patients’ care.
The leading summit regionally will be held in line with the Rare Disease Day, the program aims to cover a wide range of topics related to rare diseases, from cutting-edge research to patient-centric approach, as well as novel therapies and treatments. It also creates a friendly environment for engaging and empowering rare disease multidisciplinary teams, highlighting the importance of their perspective in rare diseases research and care, and emphasizing on the importance of a holistic approach to rare disease management.
The list of local, regional and international speakers experts in the field of rare diseases includes: Prof. Fahad Al Bashiri, professor, consultant pediatric neurologist and epileptologist, college of medicine, King Saud University Medical City, King Saud University, KSA and chairman of Saudi Rare Disease summit. Prof. Ahmed Al-Jedai,

EVENT PRESS RELEASE

Prof. Fahad Al Bashiri: Around 300 million people worldwide are affected by a rare disease, 72% of rare diseases have genetic etiology
Saudi Rare Disease Summit discussed the latest treatments and the role of artificial intelligence in diagnosing and treating these diseasesWith the participation of more than 400 local, regional, and international experts

Riyadh, Kingdom of Saudi Arabia, February 17, 2024;
400 local, regional, and international experts discussed the latest topics, treatments and the role of artificial intelligence in diagnosing and treating Rare Disease, at The Saudi Rare Disease Summit held in Riyadh, the leading summit regionally in line with the Rare Disease Day, and organized by the Saudi Pediatric Neurology Society (SPNS), and Maarefah Management the world-class events management company, and accredited by the Saudi Commission for Health Specialties, and supported by the Rare Disease Day.
Prof. Ahmed Al-Jedai, Assistant Deputy, Minister for Medical Support Services, Deputyship of Therapeutic Affairs, Ministry of Health, KSA. Said: “The best way to transform health care is to focus on the value for patients. This is the true definition of Value-Based Care”.

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